Archive for June, 2008

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The Lawyers come in.

June 30, 2008

Ryan Bisher and RyanI called Ryan Bisher and Ryan today.

I was turned down for social security temporary disability. My brother-in-law was approved for a problem with his toe, but ssa didn’t approve me?
Lagina, that’s right Lagina is sending me some paperwork.
She said that a 1st denial is standard and even a second but they will charge no more than $550.00 of the initial settlement as dictated by law.

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Up the Dosage!

June 20, 2008

Sue the Betaseron nurse called this morning. I told her about the broken needle assembly she said she would make arrangments to replace the dose.
Today I will increase my dosage from .25ml to .50
Hopefully I will start noticing a change in the excarbations (flair ups) and my bad days won’t be noticed. The tremours are worse today.

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How I got here from there.

June 19, 2008

TIMELINE

2-29

This whole thing start on March 1 or Feb 29 I had felt like I was coming down with a cold (a lot of fiends were sick) I had a lot of flu like symptoms with one major difference, I couldn’t urinate it was always just a dribble. All I could think was what the TV commercials kept saying “enlarged prostate” Take our medicine. At my age it made sense. After telling mom I had a cold or the flu for a week she convinced my sister to run me up to the emergency room. No insurance so she takes me to OU medical center. I told her the whole story while we were driving down. After we got there I learned a few things like the average person feels like they really need to urinate when their bladder has about 250cc of urine. After they attached a Foley catheter to me (i won’t get into the thought of what that nurse did) They emptied over 2000cc from me -ooooooo relief=

  • 03-20

Mom took me back to the ER. They removed the foley-cath and I still couldn’t go on my own.

That same night we went back to the ER. They put it back in and said I should come see the urologist.

  • 03-27

Went to the urology clinic a OU Med center for a cystourethoscopy. They gave me 5 self cath tubes and told me to keep my bladder emptied. They had me cath myself there to show me how. No other instructions.

04-09

Dr.Watson gave me some avendart to make sure its not prostate related schedule ct

04-28

Ct scan in Yukon

04-30

Dr. Watson agreed that it could be MS

05-20

Mercy ER

Got neurologist appointment thru cancellation with Dr. Mikawa

05-21

Dr. Mikawa scheduled an MRI

Daria took me to appt.

Dr. Mikawa called me at home that night to see if I could come back tomarrow.

Dr. Mikawa had set up a room for me that afternoon. He called my cell while I was being admitted.

He had another MRI set up for me that day.

The day Dr Mikawa had me come down for the MRI scan OU Med center called me to say they should be make an appointment to see a neurologist sometime after the first of the year

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THE MOM FACTOR

June 17, 2008

When this all started for me Mom paid for me to see a general practitioner (A DOCTOR) then she took me and paid for a CT scan then some one told her that Mercy hospital had a nero science dept. She takes me to the emergency room while the doctor there was very nice he explained to her that MS isn’t the thing an emergence room can do much about he suggested I make an appointment with the neurology dept. 8:00am the next morning she called them and the receptionist said they had just had a cancellation. Thats what got me on the fast track to where I am. During all of this Mom has paid my rent, my utility bills and the most important to me my internet bill with Cox.

Ed, mom’s husband has been very gracious during this, he is the one who told mom to pay for the CT scan. Even though there business is slow he has allowed here to help me out.

I know I have left of a hundred things she has done for me just recently but thats why I thank Jesus daily for her.

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FATHERS DAY

June 16, 2008
Sunday, 15 June 2008
Fathers Day.
I gave myself the injection in the right arm last night around 8:30 pm. I had gone to church with friends last night and that’s why the 6:pm injection was late.

Tim Russet passed away Friday all I could think was “Remember If it’s Sunday” I already called dad this morning.
 

Posted by rick.wiyninger at 8:51 AM CDT
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Relapsing/Remitting Multiple Sclerosis?

June 16, 2008

Relapsing/Remitting Multiple Sclerosis?

Posted June 3, 2008 by

What types of multiple sclerosis are there?

Multiple sclerosis is a lifelong illness that can follow one of several different patterns. The more common patterns of multiple sclerosis are listed below:

1. Relapsing/Remitting Multiple Sclerosis (RRmultiple sclerosis):

This is characterised by relapses (also known as exacerbations) during which time new symptoms can appear and old ones resurface or worsen. The relapses are followed by periods of remission, during which time the person fully or partially recovers from the deficits acquired during the relapse. Relapses can last for days, weeks or months and recovery can be slow and gradual or almost instantaneous. The vast majority of people presenting with Multiple Sclerosis are first diagnosed with relapsing/remitting. This is typically when they are in their twenties or thirties, though diagnoses much earlier or later are known. Around twice as many women as men present with this variety.

2. Secondary Progressive Multiple Sclerosis (SPmultiple sclerosis):

In this form of multiple sclerosis a person who initially had relapsing-remitting multiple sclerosis begins to develop a gradual deterioration in nerve function, with or without relapses. After a number of years many people who have had relapsing/remitting multiple sclerosis will pass into a secondary progressive phase of the disease. This is characterised by a gradual worsening of the disease between relapses. In the early phases of Secondary Progressive, the person may still experience a few relapses but after a while these merge into a general progression. People with secondary progressive may experience good and bad days or weeks, but, apart from some remission following relapsing episodes, no real recovery. After 10 years, 50% of people with relapsing/remitting multiple sclerosis will have developed secondary progressive. By 25 to 30 years, that figure will have risen to 90%.

3. Progressive Relapsing Multiple SclerosiASF   (PRmultiple sclerosis):

Progressive relapsing multiple sclerosis shows clear progression in the level of disability from the time symptoms first begin, but with episodes of clear relapses that may or may not be associated with some recovery following the acute episode. This form of multiple sclerosis follows a progressive course from onset, punctuated by relapses. There is significant recovery immediately following a relapse but between relapses there is a gradual worsening of symptoms. y

4. Primary Progressive Multiple Sclerosis (PPmultiple sclerosis):

This type of multiple sclerosis is characterised by a gradual progression of the disease from its onset with no remissions at all. There may be periods of a leveling off of disease activity and, as with secondary progressive, there may be good and bad days or weeks. PPmultiple sclerosis differs from Relapsing/Remitting and Secondary Progressive in that onset is typically in the late thirties or early forties, men are as likely women to develop it and initial disease activity is in the spinal cord and not in the brain. Primary Progressive multiple sclerosis often migrates into the brain, but is less likely to damage brain areas than relapsing/remitting or secondary progressive – for example, people with Primary Progressive are less likely to develop cognitive problems.

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HAPPY BIRTHDAY..You have MS

June 3, 2008

Nurses at Mercy.It was a great way to celebrate my 45 birthday, I had been in the hospital for a few days when Dr Mikawa came in and said it was confirmed my MRI’s showed multiple sclerosis.  He went on to say there are some new drugs to treat it but there is NO cure at this time.

When I ask him how much these drugs were (I don’t have insurance) all he would say is VERY expensive-we need to get funding for the treatment.

On my actual birthday one nurse said she thought they had a problem because her chart showed a 44 year old male but the other nurse said her chart showed a 45 year old male. They made arangments to have the kitchen send me a birthday cake.

Dr. Mkawa kept me in there to monitor me and preform some stereoid treatments (while we waied on funding news), but everytime I ask him about this drug treatment all he would say is we need to get funding.

On about the 9th day I was there a case manager, Wanda, with mercy health center (who had been talking to my mom all week) came to my room to tell me that Bayer Corp. had approved me for the Interferon beta-1b( BETASERON®) testing trials. Great News!

They told me that a nurse will come to my house to show me how to asminister the injections and the Betaseron tratments are being over nighted to me. The side effects I was told about seem minimal for what the results will be. Flu like symtems on the day I inject to treatment, short lasting and my Dr. said to get any over the counter flu relief drug that has worked for me in the past.

I was finally released on Friday May 30, 2008.

I have nothing but great things to say about Mercy Hospital, the staff, the nurses and Dr. Kevin Makiwa from the nero science department.

My thanks go out to all of them.